PDF) Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: A double ABCX model of caregiver stressors and perceived resources
PDF | Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders | Find, read and cite all the research you need on ResearchGate
PDF) Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender
Frontiers Addressing the Interactive Effects of Maltreatment and COVID-19 Related Stressors on the Neuropsychological Functioning in Children
Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia, BMC Geriatrics
Frontiers Predictors of overload in parents of children with neuromuscular diseases
Perceptions of caregivers and adolescents/young adults with cystic fibrosis regarding health care transition readiness during the COVID-19 pandemic: A qualitative study - ScienceDirect
Conceptual model of factors influencing psychosocial outcomes for
Understanding Caregiver Strain and Related Constructs in Caregivers of Youth with Emotional and Behavioral Disorders
Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire, Journal of Patient-Reported Outcomes
Frontiers Relation Between Social Support Received and Provided by Parents of Children, Adolescents and Young Adults With Cancer and Stress Levels and Life and Family Satisfaction
PDF) Perceived quality of life among caregivers of children with a childhood -onset dystrophinopathy: A double ABCX model of caregiver stressors and perceived resources
Instrumentos para avaliar a sobrecarga e a qualidade de vida de cuidadores